Cara Yesawich - Altruistic Living Kidney Donor

Calling All Living Donors - New Survey

2011-11-28T20:20:00.001-08:00

The Holiday Season is upon us and it's the time of year that we all start thinking about the past year and how fortunate we are. In these difficult times financially it is important to remember the things that we may have had to sacrifice are definitely replaced by those things that are true to our heart!

For all living Kidney Donors, I hope you will take a few minutes out of your schedule to take the survey below on after donation follow up care. It honestly just takes 3 minutes and it will help give us all better ideas of how we can make the living kidney donors follow up process a better one!
Cut and paste the following URL in your browser:

https://www.surveymonkey.com/s/follow-up_care

I would obviously love to see more people come forward and be a living kidney donor since I am convinced that is the only way we can reduce the waiting list. But I also have respect for those who would like to, but make the decision not to. It is a personal choice and only each individual can determine what it right for them. For me, I would do again if I could.

But what we all can think about this Holiday season are the small things that mean so much. It feels at times that our society has become so selfish in general that we just don't think about how important the small things are.

Share a smile just because...

Give a dollar to someone homeless and not judge what they will do with it.

Make an extra Holiday dish and share it with someone who might not be able to provide or cook on their own.

Go to the dollar store and buy a few little items to donate to children for the Holiday.

Think of someone who would love to come to your home and share a holiday meal with you and your family.

These things don't "cost" us anything but they can make such a huge difference in someones life.

Donate cell phones that you no longer need to the retailer where you have your services so they can give to a soldier in need.

Take some things that you no longer need, fun jewelry, little china items and donate them to a nursing home to be used as prizes for games that they play.

Donate blood.

I promise you that just making one small difference to someone, makes a big difference over all. I wish you and your family and friends the happiest of Holidays!

After being a Donor and Before - Taking Care of your health

2011-11-14T22:34:00.000-08:00

It's been a year and half now since I donated my kidney. I am amazed how quickly the time has gone by. I've had the honor of mentoring 23 people through the process and other than donating, it's one of greatest joys.

I have noticed there are several common threads that come after the donation and are things that all donors should all have explored prior. One of the most important things to ask your transplant center, is what type of follow up program do they have for you as a living donor. If it's just a one week and one month check up there are many issues that you need to stop and think about.

My kidney donation transplant was done at Northwestern Hospital in Chicago. They have a two year follow up program for their livng donors. What I am hearing the most now from so many donors is that other than their one week and perhaps a month follow up check up...that's it.

The reality of the situation is that all tranpslant centers should have a uniformed program in following their donors. In my opinion, it should be more than two years but I am grateful that I have the two years compared to so many.

For all of you who are considering donating, ask up front exactly what their follow up program is. As a donor, it's very important to keep up with your blood work and creatine level checks. Since I am not a medical professional, I'll ask you to be sure to take the time to discuss this with your transplant team of what the normal level is...what to expect right after the surgery and how important it is for you to
monitor it on a regular basis. If they don't have a follow up program, understand that it will be your responsibility financially to make sure that you have this test performed with your own personal physician. I am personally convinced that transplant centers should have a much longer period of time that they monitor the living donor.

Make sure that your personal physician has a copy of your complete medical file from the transplant center. Your doctor will find this helpful in future testing needs.

Be sure to ask the transplant center if you have staples internally, ask what type they are. It makes a difference should you ever need an MRI in the future. Mine are titanium, which makes them completely MRI safe. You want to be sure that yours are as well since none of us know if we might need this test for any medical reason in the future.

Although most people are told not to take Advil or any type of Ibprofen, when you are discharged, there really isn't any formal list of medications to avoid..but there are. Certain antibiotics should be avoided...even over the counter common meds can contain ingredients that might not be your best choice. Therefore I suggest that you make best friends with your pharmacist. Mine has even made a notation in my file that I have one kidney. Whenever I feel that I need something from over the counter, i.e., allergy, cold, flu medications, I always ask the pharmacist if they are conducive to taking with having one kidney.

YOU must be your greatest advocate. Do not be intimidated about asking questions and calling your transplant center. That is what they are there for. There are no stupid questions. This is your body and it's up to you take the best care possible of it. Too many people are shy or feel that they are stupid for calling. Don't let this just be just for physical issues, but emotionally as well.

Many people have expressed to me frustration after donating that they just aren't up to par after two weeks. I have to say the majority of people that I have mentored did not in fact feel ready to assume their normal duties in just two weeks.
Although the superficial incisions may have healed and are much better, you must remember that the internal healing process is longer. You may feel more tired. You might not be comfortable driving in two weeeks. This is just very basic time frame.
I have known people who were back to normal in one week, but the majority really not ready for four weeks or longer. Every person is different.

It is my hopes that transplant centers will expand on many of these issues for future and past donors. Donating is an incredible experience and I have positively no regrets. I've never second guessed my decision. I would like to see the living donor experience be even better and it is my hopes that UNOS and the transplant centers will understand how valuable their living donors are and how much information there is yet to be learned from each and every one of them.

Calling all Living Donors - Share your donor experience and help others!

2011-07-22T19:53:00.000-07:00

It never ceases to amaze me how many people who are becoming living donors or contemplating the idea, continue to get in touch with myself and many other donors.
There is no question in my mind that this is because of the need to hear it from someone who has gone through the experience themselves, who is removed from the medical community and can help them understand what to expect in the process and what concerns they may have in the healing process afterwards.

As I have said in earlier posts, other than being an altruistic donor, mentoring to others is without a doubt one of my greatest joys! Numerous other donors have found that to be their mission as well. Although transplant centers do educate their donors particularly from a medical perspective, it is my opinion they would do a much better job to have an in-house advocate who has been through the process and can just spend time with a donor in a relaxed environment to anwer any questions they may have and the advantage to speak with someone who has actually gone through the process. One of the things that I feel strongly about is that one of the elements that medical staffs don't understand is that so many people are intimidated by them and their mind goes blank, or they think their questions are "stupid" or a waste of the staffs time.

I developed the survey below for Living Donors to share their experience so that I am able to along with several others who are mentors, hone in on the areas that they would like to have had better knowledge about so it can be passed on in the mentoring process to new donors.

It is simple, doesn't take more than 15 minutes to complete and will help to make the mentoring process even better for those who are dedicated to helping others through the process.

Here is the link for the survey, simply copy and paste it and it's that easy!

https://www.surveymonkey.com/s/9WVJLSY

Giving takes many forms, sharing your experience will be a great help to others. Thank you for your participation and don't hesitate to let me know if you have any questions.

What a Great One Year Anniversary

2011-06-20T20:02:00.000-07:00

June 8, 2011 was my one year check up after donating at Northwestern Hospital here in Chicago. I feel great, but you are always happy for the opportunity to have follow up care. My creatinine level with one kidney is 1.0 which is perfect. Whew... great to hear those words! I can't stress enough how important it is for living donors to make sure that they know what their creatinine level is. If for some reason you do not have follow up visits at the hospital that you donated then please be sure to consult with your primary physician and discuss how often this test should be performed. Fortunately Northwestern does have a very pro-active check up program for living donors. That is not always the case. I've heard from several donors that once they have donated, it's good-bye and thats the end of it. This is definitely something that should change with all transplant hospitals. Don't just tell us what we did was wonderful...then kiss us goodbye. Thank us by letting us know that our well being is equally important as the receipients.

June has been just the most incredible kideny month! Prior to my annual check up, on June 3, 2011, I was on my way to Washington D.C., to Georgetown University. I had been selected a couple of months ago to participate in a living donor study, which I was thrilled to be part of. The icing on the cake? Angela Stimpson, who was the first person I mentored through the living donor process was chosen as well to participate. Ok...there is no way I am not going to meet this incredible lady. I wrote Georgetown and told them that I would love to participate and that I knew Angela had been chosen as well. I asked them if there was any way possible that the two of us could be scheduled the same weekend so we could meet each other.
Thanks to Dr. Marsh and her incredible team, they made it happen.

June 3rd I landed at 12:45pm D.C. time. Angela's plane arrived at 1:15pm so I told her I would meet her in the baggage area. I was nervous...excited...nervous...wait did I say nervous? To finally meet this voice that I had become so close to over the last 10 months. To see her walking down the concourse...was incredible with her big smile. We just hugged..and it was hard to let go. What an honor and she is now mentoring to so many others.

The study was based on living donors and I do not want to compromise the study details in any way. It involved a great deal of computer tasks, written tasks, word tasks and an MRI as well as an in depth interview of my journey as an altruistic donor. I was nerous about the MRI so I told the team if there was a tumor the size of a grapefruit in there...I wanted to know. The testing lasted for more than seven hours. When I got back to the hotel I just looked at Angela and said, "you see these sweat pants I'm wearing? Thats what I am wearing tonight." Between all the testing of the day and anticipation of the weekend, I was exhausted! But I do have a beautiful photo of my brain just to prove to people I have one! I've decided to carry it in my wallet to whip out for the perfect moment.

The weather was beautiful so we walked to Martins Pub and had a postively wonderful meal. I think we both would enjoy nothing more than to just take part in studies on a full time basis. It meant so much to sit and chat with someone who appreciates your journey and you can share the moments and laugh with. This is the beauty as well as importance of mentoring others. My journey has lead me to a very special kidney sister. Once again I have to thank Harvey Mysel of the Living Kidney Donors Network who put Angela and I in contact with each other.

lkdn.org Living Kidney Donors Network
oksolo.blogspot.com Angela Stimpson's blog
kidneymama.com hosted by Nancy Murrell

One Year Anniversary of Donating a Kidney!

2011-04-27T17:35:00.000-07:00

April 26, 2011 marked my one year anniversary of donating a kidney. To be honest I can't believe how quickly the time has gone by. I woke up yesterday with a smile on my face, thinking about where I was last year, the 8 people that were able to get a kidney because of my altruistic donation and just felt that "Life Was Good".

I had a beautiful note from my recipient and had a chance to speak with him over the phone as well. I asked him to wish my kidney Happy Anniversary for me! In the evening, I attended Harvey Mysel's workshop "Finding a Donor" which was very well attended here in Chicago. As I was sitting there listening to the questions from those needing a kidney I was amazed as always of just how many people have not had access to options to receive a kidney! I haven't come up with any one answer except there is a major lack of information coming from sources who the kidney patients have contact with. Harvey Mysel of the Living Kidney Donors Network is the person that is providing this much needed information for these individuals.

As a donor and mentor to others who are either donating or considering donating, I am equally an advocate of the need for EARLY education to those needing a kidney.
As the number of those who need a kidney continue to grow, now up to 88,000 on the waiting list for a deceased donor and most likely a 5 year wait...I am convinced that living donors are the only way to see this list decrease. Last year when I donated the waiting list was 83,000. In just one year another 5,000 have been added.
11 people die each day waiting for a kidney. So when people ask my why I donated my response is...because I can make a difference.

After the worshop several people who attended said to me "You are a really special person to donate a kideny" My response to that is "there are a lot me's out there"
I've had the pleasure of mentoring to many altrusitic donors. Angela Stimpson being one of them who has an outstanding blog and continues to be a mentor and advocate to others. I am not unique or special...I am however devoted to seeing kidney recipients have their deam come true in getting a kidney and being able to live their lives without dialysis.

I respect and understand that being an altruistic donor is not for everyone. What I can share with you is that if I could do it all over again...I would in a heartbeat.

Meet Brenda Bogue, Altruistic Living Kidney Donor

2011-01-25T23:32:00.000-08:00

As an altruistic living kidney donor, there is one thing other than my donation that brings me incredible joy...that is to mentor other individuals who are thinking about
becoming a living donor. I feel blessed to have met so many incredible people while mentoring. It's as if I have a "kidney community" of wonderful friends. I hope all of you will take the time to read Brenda's journey...as she too would like to become a mentor and advocate to others who would like the benefit of communicating with others who have been through the process.

BRENDA'S STORY

I read the newspaper every day...my journey began this past Summer when I came across an article about a man who lost his 16 year old daughter in a tragic car accident. His daughter was an organ donor and he was very inspired when he learned that her heart valves saved another person's life. In her memory, he became an advocate to encourage people to become organ donors. Early on he learned of the need and the opportunity to be a living kidney donor...and he did just this...which is what the article was about.

I too had made the decision to donate my organs upon my death. But before reading the article this past Summer, I had no idea that it was possible to be a living kidney donor. I had no idea how many people were on the waiting list for a kidney, 87,000 and continues to rise. Over 5,000 people a year die while waiting for a kidney. I did not realize that an individual can lead a normal life with one kidney. In fact 1 in 700 are born with one kidney and lead a perfectly normal life. Furthermore, I was encouraged to hear that the donor's surgery is laparoscopic which is far less invasive then traditional surgery...so this means a much shorter recovery time. Although there is a risk in any surgery, being a living kidney donor overall is very safe.

I am a Christian and therefore I seek out God's wisdom through prayer before making any major decisions. Before I even finished reading the newspaper article, I felt God prompting me to consider being a living kidney donor. I imagined what it would be like for one of my family members whose kidneys were failing and in need of a kidney transplant...knowing that his/her life would be greatly compromised and significantly shortened. Undoubtedly, a few of my family members would step up to donate...but...what if we learned that none of us were a match? This happens approximately 30% of the time. Being a family member doesn't automatically mean you are a match to another family member. We would be disheartened and feel that hope was lost. The average waiting list for a deceased donor kidney is approximately five years. But then imagine being told that there is an option called a kidney pairing! A kidney pairing can be done if you are not a match for a specific recipient and the same situation exists for another donor and recipient but you match the others recipient. Hope is given back!

My decision to be an altruistic donor came after praying to God for guidance, talking with my husband Mike and my sister Stacey. Putting myself in "someone elses shoes", and reflecting on the forty-three years of good health that God has blessed me with...for me it was a fairly easy decision.

In the subsequent weeks I did further research on the internet on the topic of being a living kidney donor. This research included reading about the experiences of two recent altruistic donors, Cara Yesawich and Angela Stimpson (oksolo.blogspot.com). I found their blog sites to be very informative and inspiring. Another valuable site with a wealth of information is The Living Kidney Donors Network (lkdn.org). Harvey Mysel started the Living Kidney Donors Network and is a recipient from a living donor as well. His site is dedicated to those who need a kidney as well as those who are interested in being a living kidney donor. I printed several articles from this site for my family members to read so they could fully understand the process and minimal risks.

A very valuable resource of information and support to me during my journey of becoming an altruistic donor, was the mentoring I received from Cara Yesawich. Cara is the altruistic donor domino that allowed 8 people to receive a kidney in Northwestern Hospital's largest kidney pairing in April of 2010. She is passionate about being a mentor for others who are on this journey and came to the hospital to offer her support immediately following my surgery..what a blessing she was to me! For anyone considering becoming a living donor, I strongly encourage you to take advantage of the "gift" of having a mentor. I welcome the opportunity to share my experience with anyone. My email contact is brenb24@gmail.com

My surgery was on December 30th and because I am an altruistic donor, 3 people were able to receive a kidney in a pairing at Northwestern Hospital. I experienced moderate pain the first several days and slept a lot. After a week I turned the corner and was able to return to work half days (my energy was still not at 100%)I was back to work full time by the third week and am now about four weeks out from surgery and back to normal.

I plan on starting to run again in a week or two and am registered to run another marathon in September.

I received a beautiful card from the family of the gentleman who received my kidney in the kidney pairing..part of it reads:

Dear Brenda,

It is impossible to thank someone for a gift such as you have given to us.
Dialysis allowed my Dad to live, but your gift of a kidney has given him a
renewed quality of life worth living, and for that, we are eternally grateful.

The sacrifice that I made in donating one of my kidneys was minimal compared to the gift of giving an improved quality of life, which I was able to give someone else.

ADDITIONAL RESOURCES

The Living Kidney Donors Network - lkdn.org
Angela Stimpson, Altruistic Donor - oksolo.blogspot.com
Kidney Mama, Nancy Murrell - kidneymama.com

The Different Types of Living Kidney Donors

2011-01-04T19:04:00.000-08:00

I wish all of you a joyous New Year filled with hope and love. On December 30, 2010 I had the pleasure of visiting "Brenda" at Northwestern Hospital who is an altruisitc donor like myself. Brenda is my eleventh "kidney sister/brother" I have had the pleasure getting to know. Brenda had contacted me to gain insight directly from someone who had been through the process and we spoke for almost two hours during one of her visits for testing at Northwestern Hospital before her procedure.

Because of Brenda's altruistic donation, three people received a kidney! I am convinced that there are many out there that would like the opportunity to contact others who have been through the surgery to ease their minds and answer the questions we always seem to forget to ask. For those of you new to my blog and would like the history of my journey donating a kidney, please be sure to go back to the older posts to read the experience from the beginning. It will help answer questions you may have.

That is one of the reasons I like to not only speak with people myself, but refer them to others that I know who have been through the process as well such as Angela Stimpson who has a blog called oksolo.blogspot.com as well as Harvey Mysel, founder of The Living Kidney Donors Network, lkdn.org Brenda will be putting together her story for me and I will share that with you all on the next posting.

My surgery was on April 26, 2010 at Northwestern. I was the altruistic donor/domino that allowed eight people to recieve a kidney. Since then it has been my mission to serve as an advocate to other donors as well as to The Living Kidney Donors Network.
I received the Circle of Honor Award at the John Brockington 9th Annual Pro Athletes for Life Gala in October 2010, appeared with Harvey Mysel of the Living Kidney Donors Network on WTTW Channel 11 here in Chicago, have attended several fundraisers for kidney donor awareness and I am sitll amazed at how many people are totally confused about the Living Donor process and how it works.

Just to add a little humor here, I literally had a woman who heard that I was the domino for eight people to get a kidney and she came up to me to congratulate me and dead seriously asked, did they cut your kidney up into eight pieces? I had that deer looking into headlights look and certainly didn't want to make her feel uncomfortable. So I explained how the kidney pairing works. This posting I want to clarify what the difference is between a designated donor and an altruistic donor.

A designated donor is someone who has a loved one, friend, or someone that they know, who needs a kidney and are willing to donate one of their kidneys on their behalf. Now, understand just because you are a family member or friend, you are not always a perfect match for the person needing a kidney. BUT, the good news is, that doesn't stop them from getting a kidney. You will go through testing to determine if you are an appropriate match for your recipient. If you are not, then you should discuss being part of a kidney pairing, where your kidney would go to someone else who is a match and that persons designated donors kidney would go to the recipient that you know.

An altruistic donor, is someone like myself and many others, who would like to donate a kideny but does not have someone to donate to. It is something I wanted to do to give someone else an opportunity for a better life and avoid diaylsis.
With an altrusitc donor, sometimes hospitals can use the altrustic donor as the "domino" for a kidney pairing. Sometimes its two people sometimes its six and in my case, eight people (16 people total involved in the pairing) received a kidney.
The fact the someone donates a kidney, a gift of life, is a blessing beyond words for the recipient.

There are no stupid questions. When you or someone you love is suffering from kidney failure, don't hesitate to research and contact as many people as you can. The Living Kidney Donors Network, lkdn.org is dedicated in explaining all options for the recipient as well as the donor. One of the new programs that The Living Kidney Donors Network is offering is a beautiful starfish to thank those of you who have received a kidney and would like a special way to thank your donor.

One of the most common things I hear from people who I have mentored is "I can't believe more people aren't doing this". Well as with anything, not everyone is alike but for those of you who have, or are going to donate I can assure you that it is a decision you will not only never forget...but never regret.

It's one thing to drive a new mercedes up to someones door and say surprise!!! But when you give someone the gift of life...how do you possibly top that? I consider it a true honor to be a living kidney donor.

Six Month Check Up, Happy Holidays!!

2010-12-17T08:18:00.001-08:00

Well its officially six months since I donated a kideny. I just completed my six month check up and I am happy to say that after extensive blood tests, all is fantastic. My creatinine level is perfectly normal with my kidney. I will go again in six months for the same tests. It was quick, painless and always a nice relief to know that everything is great.

With the Holidays upon us and all the thoughts of family and loved ones that we experience it is truly a time of thanks for so many reasons and I am so happy that
because of my altruistic donation, eight people are celebrating the holidays along with me! You can't ask for more than that.

In the past two months I have been spending time and mentoring 5 new altruistic donors through the donor process. One is here in Chicago and she will be donating on December 30, 2010 in a pairing. She is a lovely lady inside and out and I so enjoyed spending time with her this past week. I look forward to seeing her following her surgery. She was thrilled with the information on The Living Kidney Donors Network that I referred her to and she printed the information for her family. She found that it was easy to understand the process and made her family feel more at ease about her decision to donate.

The greatest joy of the Holiday season...or any day for that matter is giving. Giving doesn't have to be expensive. Even if you are not considering to be a living donor, you can pass the information along to someone you may know who either needs a kidney or is thinking about donating. It still boggles my mind how many people who need a kideny have not been told about living donors and kideny pairings.

To all of you who have been reading my blog I thank you and hope the information has assisted you in some way. For those of you who have written to me and spoken to me, I consider it an honor to share in your donation process.

Wishing you all much joy, love and happiness!

Be sure to visit these sites.

lkdn.org The Living Kidney Donors Netowrk
oksolo.blogspot.com Altruistic Donor, Angela Stimpson
kidneymama.com

The Living Kidney Donors Network, My Mentor, Harvey Mysel

2010-11-03T16:56:00.001-07:00

It has now been 6 months since I donated a kidney altruistically. I feel great! It still boggles my mind that I was the domino for eight people to receive a kidney at Northwestern Hospital. Never did I think that my donation could create such an incredible pairing. But it did.

It’s been a long over due thank you that I owe to Harvey Mysel, Founder of the Living Kidney Donors Network here in Chicago. Although I realized my desire to donate at the John Brockington Foundation four years ago, Diane Brockington was the one who put me in touch with Harvey Mysel. Harvey is here in Chicago and is a recipient of a kidney from his wife Amy, I figured the more input on the topic the better.

It’s one thing to do hours and hours of research on the topic, which I did. But it’s another to be able to sit down and actually speak with someone as knowledgeable as Harvey and has been through the process as well as his wife’s experience as a donor.

I will never forget the day that we first met. It was at the coffee shop right by Northwestern Hospital on January 13, 2010. I didn’t know what to expect. What I found is an incredibly smart man, who is dedicated to getting the word out to those needing a kidney of their options. Options that so many people have YET to become aware of or been educated on.

Harvey started the Living Kidney Donors Network in 2007 and I can assure you that his heart and soul are dedicated to those needing a kidney. He does numerous workshops, outreach programs and Harvey…without a doubt….was my Mentor. I was so very fortunate for Diane to make this introduction for me.

We spoke for nearly an hour and half and I was quite surprised to find out that there are not a lot of altruistic donors. Before our meeting I had just completed the necessary paperwork for Northwestern but had not yet mailed them in. I had also registered with the National Kidney Registry.

Harvey took the time to walk me through the process of becoming a donor and after our meeting I decided to go with Northwestern since that is where Harvey and his wife had their surgeries.

His workshops are outstanding and I’ve had the honor of attending and participating in several of them. One of his workshops is focused for those needing a kidney. This work shop helps those waiting for a kidney look into other options in addition to the National waiting list for a deceased donor, which is approximately a five year wait as of today. Stop and think about this for a moment. You are told that you have a five year wait for a deceased donor. You need a kidney…you are most likely going to have to go on dialysis which is extremely tough. Do you just stop there and accept the fact that you are going to have to wait five years and HOPE that you receive the call for a kidney?

If I were on the other side as a recipient…I’d want to know EVERY SINGLE possible option for kidney transplant. Where do I start? An easy question to answer... The Living Kidney Donors Network, lkdn.org. There is a wealth of information, webinars and workshops for those needing a kidney. Harvey has assisted SO many people with his foundation and the information is right at your finger tips! Harvey makes himself so available to everyone, donors and recipients. From the medical perspective, a kidney from a living donor is the best possible scenario a receipient could ask for.

When I sat through my first workshop with Harvey, I was truly amazed how few people in the audience really understood Living Kidney Donation. I thought. how can this be? Why are these people not aware of this information? So many were under the misconception that if a husband, wife, loved one or friend wanted to donate, but were not a match..that that was the end of it. BUT ITS NOT! This is what kidney pairings are all about! I truly hope you will take the time for visit lkdn.org to gain a better understanding of kidney pairings. As a Director of Marketing I see a huge challenge in getting this information out to the general public in a clear, concise way. Then I ask myself…well why aren’t they hearing about this earlier, from their primary care physician, their nephrologists.

I have always been an advocate of being an organ donor. I realize that being a Living Donor is not for everyone…but it certainly was for me! I know there are many others like me. I am not special. I just wanted to make a difference.

Since my donation I have had the pleasure to mentor four others through the process and am now working with two new donors. Harvey Mysel recognized the need for those considering donating, the opportunity to speak with someone else who had actually donated. So he started the mentoring program. Other than donating a kidney what brings me pure joy is the opportunity to speak with others wanting to donate. It gives me even more pleasure to know that they will now be incredible mentors to others.

I would think any hospital, dialysis center, nephrologists and social workers, would want Harvey Mysel at their finger tips. They do…they just need to take advantage of this incredible foundation and the numerous workshops that the Living Kidney Donors Network offers.

Harvey, I thank you for your hours of time speaking with me..guiding me…through every step with respect and care and for being my mentor! Know that I am your biggest fan!
Thank you Diane Brockington for leading me to Harvey. The Living Kidney Donors Network is exactly what all donors and recipients need. Unbiased, truthful information and most importantly….hope!

The Living Kidney Donors Network, lkdn.org
The John Brockington Foundation
Angela Stimpson, OkSolo.blogspot.com
Kidneymama.com Nancy Murrell

Sharing The Word Of Being An Altruistic Donor

2010-10-19T16:38:00.000-07:00

Cara Yesawich,
John Brockington,
Ann Lopez

The John Brockington Foundation held it's 9th annual Pro Athletes for Life Gala on Tuesday, October 5, 2010. It was held at the San Diego Hall of Champions in Balboa Park in San Diego, California.

Myself and Ann Lopez who donated to her husband George, were both honored with the Circle of Honor Award. This evening was beyond any of my expectations and I can not tell you how honored I was to receive this award. To stand and speak at the very event that I attended four years ago and inspired me to want to donate a kidney was extremely emotional. It was my moment to share how much I believed that Living Donors would be the answer to the never ending and growing numbers of those waiting for a kidney. It also allowed me the opportunity to speak on how important it is to share the mentoring process with others who are thinking about donating.

It has been such a joy to me to speak with others such as Angela Stimpson, Robyn Wheatley and several others who wanted the chance to communicate with somone who had been through the donor process. They are now advocates for others as well. I am totally convinced that many do not understand the living donor process. Harvey Mysel of The Living Kidney Donors Network has now started several new programs, one focusing on mentoring to those who wish to speak to others who have gone through the donation process. I am also convinced that the general public has major misconceptions of being a donor. Many people who have a loved one that needs a kidney do not realize that just because they are not a perfect match for their loved one, that they can still be involved in a pairing with others so that their loved one can receive a kidney from a living donor.

What is amazing is that those of us in good health can give the gift of life to another. I understand and respect that there are many people that don't feel the same way about being an altruistic donor. I think all of us can appreciate that when a loved one is need, it's a no brainer. So when people ask me why I decided to donate without having to....I respond...because I can...make a difference. I CAN give life. That is a decision I will never regret.

The John Brockington Foundation has been a driving force for people to sign up and beocme organ donors and now has opened the door to include living donor ship as well. At the Gala John and Diane Brockington received the Donate Life Award.

The purpose of my blog is to share the experience and spread the word. But for any of you reading this, it also will give you knowledge should your path cross with someone facing the need of a kidney to help them explore options.

Please be sure to visit the following web sites for more insight to Living Donors!

lkdn.org The Living Kidney Donors Network
oksolo.blogspot.com Angela Stimpson, Altruistic Living Donor
johnbrockingtonfoundation.org The John Brockington Foundation

The John Brockington Foundation, 9th Annual Pro Athletes for Life Gala

2010-09-03T17:43:00.000-07:00

The following is announcement from The John Brockington Foundation for it's 9th Annual Pro Athletes For Life Gala. I can not tell you how thrilled I am to be attending this event and receiving the Circle of Honor Award. Many of you have read from my earlier blogs that this is the event in 2006 that made me realize..I wanted to donate a kidney. So it will be incredible to share in this event that will be focusing this year on Living Donor Ship! Since it's inception JBF has been striving for years to make people aware of how important it is to become an organ donor, something I have always felt passionately about as well. It's incredible that they are now including the importance of Living Donors as well. It just shows their dedication to finding ways to reduce the number of people waiting for a kidney.

The last month has been very busy for me working with numerous people who have contacted me that are either going to be donating a kidney, or are thinking about doing so. It has been such a pleasure to develop these relationships and to be part of the mentoring process. I have also been working Harvey Mysel of The Living Kidney Donors Network here in Chicago on workshops to help educate those who need a kidney to be pro active in finding a donor. One of the incredible individuals who I have had the honor to get to know is Angela Stimpson in New York. She is an altrusitic donor as I was and she has a fantastic blog that you should definitely take a look at: http://oksolo.blogspot.com/
Angela will be donating a kidney on September 22, 2010.

The challenge always remains to keep educating people on the idea of being a Living Donor. There is no question in my mind that this is imperative to lower the number of candidates waiting for a kidney. The average waiting time for a deceased donor kidney is five years. That means five years on dialysis. I respect that this is a very personal decision. It is not my mission to make anyone feel obligated to do so. It is my intention to continue to speak and educate people on the advantages of being a living donor, altruistic or not. According to the latest figures from the OPTN site there are now 86,000 people waiting for a kidney. That figure has risen from 84,900 back in April with an additional 1,100 in just four short months!

Friends, it’s that time of year again—to mark your calendar for Tuesday, October
5th. My foundation is hosting our 9th Annual Pro Athletes For Life Gala at the San Diego Hall of Champions in Balboa Park. This wine and hors d'oeuvre reception will feature music, silent and live auctions, and yes, the popular Celebrity Champagne Pour. Join members of the transplant community, sponsors, friends, and Pro Athletes for Life on Tuesday evening, October 5th in a special tribute to living donors, including Ann Lopez who donated to her husband George and our own Cara Yesawich, inspired to become an altruistic donor after attending a JBF Gala.

Ninth Annual Pro Athletes for Life Gala
Tuesday, October 5
6 PM—9 PM
Price: $75 per person, $125 per couple
San Diego Hall of Champions
Balboa Park
2131 pan American Plaza
San Diego, CA 92101

RSVP for tickets to 619 299-4426 or

visit our website www.johnbrockingtonfoundation.org

Please join us as a sponsor or guest to make this Ninth Annual Pro Athletes for Life gala one that we remember for bringing us together in difficult times and for the generous and loyal spirit of our friends.

Run Hard,

John Brockington
President

The John Brockington Foundation
619 299-4426
www.johnbrockingtonfoundation.org

Give the Gift of Life
www.donatelife.net

The Importance of Mentoring For Living Donors

2010-07-28T13:03:00.000-07:00

It has now been three months since my surgery to donate a kidney. I feel as if I am at 100%! Since my surgery I have been corresponding with four different individuals about my experience. The story I am posting below comes from Robyn Wheatley who is an altruistic donor like myself. Although Robyn had already made her decision to donate a kidney and had been approved as a donor by Northwestern Hospital, she still wanted the opportunity to speak with someone who had actually gone through the process.

She had read the article of my kidney donation in the Naperville Daily Herald and found the link to my blog. She sent an email asking if I would consider meeting with her for coffee one day and of course I was thrilled to say yes. What I find interesting is with all the support of medical knowledge, there is still a great need for anyone who is a living donor to offer to assist others who want to know what to really expect. Understand that I don't mean medical knowledge, this is out of my area of expertise. But I believe that each living kidney donor can greatly assist others who are donating or considering donating by being accessible to them and sharing their journey.

Robyn is an incredibly brave, smart woman and I am honored to have met her. I asked her to write her story to share with others as it is her desire to be a mentor to others.

My Altruistic Living Kidney Donor Story
Robyn Wheatley
July 23, 2010
Yesterday I met the man who now has my left kidney. He had no idea who I was prior to our meeting yesterday, and I had no idea who he was. We were strangers. For both of us, I am confident in saying, our identities and what we looked like did not matter. But, we are no longer strangers. With tears of joy, he and I hugged and exchanged a nervous greeting and shared an appreciation for what had just happened not yet a week prior. His life has been changed in obvious ways, but this process has indeed changed my life in less obvious ways; it has made me re-evaluate the value I place on my own life and relationships. I will be processing this for some time to come. But I’m getting ahead of myself with the story.

On Thursday, July 15 I donated one of my kidneys to a complete stranger, starting off a chain for a kidney swap. (See The Alliance for Paired Donation for more information on how altruistic donor chains work.) I had the surgery at Northwestern Memorial Hospital. Very simply, I did this because I can. The decision I made had come after a lot of research and consultation, and much time and effort.

I was inspired to start this process back in March as I read the story of another local man’s recent decision to donate a kidney to a cashier at a food store he frequented over the years. He learned of the woman’s progressively deteriorating health and was made aware of her kidney disease. She had exhausted all possibilities with family members and close friends-no one was a match. The man offered to get evaluated as a potential donor. It turns out that he matched her well, and the rest is history. The woman gets to live a longer, fuller life of many years and will no longer be subjected to the torture of dialysis. That was all I needed to hear. After doing some initial research (of which there is a plethora) I called Northwestern Memorial Hospital’s kidney transplant program. Their reputation precedes them.

I do understand and appreciate that what I have done is unusual. It is not for everyone. As I have shared this news with people I received wonderful support and encouragement; there have been a few looks of puzzlement; and, lastly, there have been many who still can't seem to wrap their heads around why it is I would choose to donate one of my kidneys to someone whose identity is unknown to me, not a family member, not a friend, not even an acquaintance. Regardless of the response, I know that all of the comments come from a place of love and concern, and include people very dear to me.

The transplants were “successful”, and both recipients are doing well. It turns out all of us in both pairings live near and within Chicago's city limits, and we are all in our 30s. The recipient of my kidney laughed and said that his girlfriend, who coincidentally donated her kidney to the recipient in the second pair, when it was found that she was not a match for my recipient, was certain that his donor would be a woman. Well, he said, “she was right.” As we walked out of the transplant center today I said, “Don’t be surprised if you cry more easily now; that may be my influence. I am known to be openly emotional." He assured me he’d take good care of his new, healthy kidney, and I was certain he would-never a doubt, not really something I even pondered to be honest. If anyone would not take a healthy transplanted kidney for granted, it’s someone like these two recipients who have each spent years on dialysis not knowing when, where or if a transplant would ever be a possibility.

As I’m reflecting on the meeting with the recipient of my kidney and the woman in the second pairing I am wishing more people knew the facts about living kidney donation and how little effort was involved relative to the life-changing/life-saving that has been made possible with my left kidney. I would do this again in a heartbeat if I could. The transplant team did all of the hard work with comprehensive evaluation of myself and matching with the recipient and pairs. My hard work came immediately after the surgery, if I can even call it hard work. If I had more kidneys to donate I would do so, it is that powerful. The woman in the second pair of the chain had just had a difficult conversation with the transplant team; she was not sure she had many options left. But, as an altruistic living donor in the equation I was able to indirectly give her back quality and quantify to her life; it has given her back hope and future possibilities. What a small price I paid. My one-pound kidney represents so much more than just an organ and returned functionality to another; it is a gift that my body was able to provide-it is life. And, the gift is not just from me to the then-stranger in need, it is to me as well. It’s reaffirming, makes me want to appreciate my life and everyone I have in it with me, something that’s not come so easily in the recent past. Words seem inadequate to describe the experience.

Please feel free to contact me with any questions or if you are looking to converse with someone who has been through the process:
robynwheatley@yahoo.com

These are other sites you should definitely visit:

Living Kidney Donors Network - lkdn.org
Ok Solo, Angela Stimpson, Altruistic Donor - http://oksolo.blogspot.com/

WTTW Channel 11 Interview:
http://lkdn.org/video.html

The healing process after donating a kidney

2010-06-14T21:16:00.001-07:00

It has been six weeks since I donated a kidney. So many people have asked me to give my view of the healing process. I made sure before going into the hospital to do any errands since I knew I would not be driving when released from the hospital. And of course me being OCD I had to be sure I had exactly what I wanted. God forbid I ask someone to do a me a favor! I stocked up on any foods that I wanted for when I came home as well as magazines, books, anything I might enjoy while recuperating.

The first week was without a doubt the most difficult. For me, when I am not feeling that great, I prefer to just hang out in sweats and not have too many people hovering over me. It is also important to avoid people who may have colds or flu. Coughing or sneezing is not fun right after surgery. If you do need to cough or sneeze, holding a pillow over your tummy will help a great deal. I was instructed to not lift anything more than 10 pounds for the first couple of weeks which believe me...I had no desire to. Although I was hungry I found that I couldn't eat the usual portions I did prior to the surgery. I am sure part of this was from not eating that much in the hospital but I also believe that because there is so much CO2 pumped into you when you have the surgery, there is a bloating feeling and adding too much food at one time makes it more uncomfortable. A friend of mine who is in an incredible cook brought me my favorite...fresh home made soups. I did make sure to eat something every three to four hours.

Sleeping the first week was a bit of a challenge because I am a "tummy sleeper". There was NO way that I was going to lay on my stomach to sleep. I tried a bazillion different positions but I found that putting a pillow between my legs while lying on my side took pressure off of the incision. I more or less gently rolled out of bed as opposed to popping up like I normally would. You will of course receive pain medications when you leave the hospital and most likely a stool softener, as pain medication has a tendency to cause constipation. Honestly, having a bag of good old fashioned prunes is a major help in this area.

The second week was definitely much better. I had stopped using the pain medication which meant it was ok for me to drive. I have to tell you that driving is THE one thing that gave me the most discomfort. I did fine on short runs to the market, etc., but I made the mistake of thinking I could visit friends in the burbs that next week. NOT a good choice! I was literally stuck in the usual Chicago traffic on I88. Forty-five minutes passed and I think I managed to move about 8 miles. I felt incredibly nauseated and I was so uncomfortable around the lower incision, that I pulled off the interstate and went back home.

I think everyone has a good idea of what their own pain tolerance is. I have a fairly high tolerance and I am not one to use pain medications unless I'm really in agony. I'd rather know what's going on with my body in the healing process. By the time I got home I could not WAIT to take a half a pain pill. People who know me will tell you I avoid taking anything but this was misery. Now I do have a car that is sporty and low to the ground. I tried every possible seat adjustment button I could for the seat to no avail in being more comfortable.

I made sure to contact my transplant coordinator to make sure that this was normal and not an issue. One thing I can not stress enough is DO NOT hesitate to call the Transplant Unit, they are available 24 hours a day if you are having difficulty of any kind or have questions. As far as I am concerned, there are no stupid questions.

Now I know that the hospital says that most people can return to work after the first week. Obviously that doesn't hold true for someone who has a position that requires hard labor or lifting anything. But even if I had a desk job, I doubt seriously that I could have gone back after one week and have resumed a full time schedule. Again, everyone is different. I found that if I was confined for any length of time, sitting, driving, attending services that I simply could not do it without getting up and moving around.

I love to walk. So after the first week I started my daily walking routine. I generally walk three miles a day but I took it slow the first week and did one mile and gradually worked up to my usual three miles. I found that walking really helped me work out the "kinks" as well as help boost my energy level.

Remember...you just gave the most wonderful gift you could give...and you owe it to yourself to take care of you!

Link for the WTTW Channel 11 Interview:
http://lkdn.org/video.html

The Importance of Early Education on Kidney Transplant Options

2010-06-01T21:11:00.000-07:00

According to the OPTN, the Organ Procurement and Transplant Network, as of today there are now officially over 85,000 people on the waiting list for a Kidney.
I received an email this week that was basically a "scolding" that I was a "newbee" to the Living Donor community and if I was going to educate the public, I should give more detailed research. I would like all of you to understand that I am not a medical professional and this blog is dedicated to MY journey as an Altruistic Living Donor.

I have stated in all of my blogs that it is important for anyone considering this procedure to do their research and homework and visit numerous resource sites.
My mission is to encourage Living Kidney Donors by sharing my personal experience.

Out of 107,529 who are on the National waiting list for a transplant, 80% consist of those awaiting a kidney transplant. The average waiting time for a kidney from a deceased donor is an average of five years. Five years is a long time and many will become ineligible to receive a kideny even if it becomes available. This keeps the kideny transplant in the number one postion of need. While the waiting list for a kidney has doubled over the last 10 years, the donors list has not kept up with the need. With the number of people waiting for a kidney continuing to grow, our challenge is...where do we get a kidney?

Please understand that I am the first to be a MAJOR supporter of urging people to become an Organ Donor. I think it is imperative to support all organizations who promote and educate on becoming an organ donor. I myself have been a registered organ donor since the 1970’s. But we do face the dilemma that even if all of the organs could be harvested, a majority of them will not be acceptable for numerous reasons. These reasons are the same for those who are interested in becoming a living kidney donor or even a donor of blood. I do believe that organ donation is crucial because of the numerous organs and tissue that can help others including those waiting for a kidney.

With this being said, it is positively crucial for EARLY education to those who may potentially need a kidney transplant. It certainly is not an easy topic to bring up to family and friends, but one that is very necessary.
You absolutely must discuss this need, tell your story. The more people that know, the stronger possibility someone may step up and offer to donate. If they are not a match they may still be willing to be part of a kidney pairing in order to find an appropriate match. For more information on Living Kidney Donors and Kidney Pairings, please go to the Living Kidney Donor Network website;
http://www.lkdn.org

The second challenge we have is that too many people suffering from kidney failure are not receiving information in the early stages from their physician about the idea of living kidney donor ship. It would only seem natural to me that physicians should be receiving information on this process on a regular basis. It would be ideal to see the topic be included in Continued Medical Education programs for physicians. Too many patients are being placed on dialysis and the national waiting list which means 5 years or more before a kidney is found. Some patients don’t have 5 years to wait.

Receiving a kidney from a Living Donor is the BEST POSSIBLE form of kidney donation according to medical research. It is my hopes at some point to gain funding to make a 45 minute DVD on the living Donor Process. It may take a while but it’s a purpose that I am dedicated to.

We absolutely must find a better way to communicate and educate the need of kidney patients. The reality is that the only way we can reduce the wait for a kidney is to increase the number of Living Donors.

Many people who do not live in a major city may face a difficult time in finding hospitals that have transplant programs. If that the case then I would suggest you that contact major hospitals in a larger city near you. I can not begin to tell you how many people have written to me from my blog saying they only wish they had this kind of information earlier.

These points all lead to how important it is to have a non-profit organization like the Living Kidney Donor Network.
I hope you will take the time to comb this website and listen to the webinars that are available to you by Harvey Mysel, President and Founder. The National Kidney Registry is another invaluable site; http://www.kidneyregistry.org/index.php?cookie=1

Spread the word and Make Life Happen!!

WTTW, Channel 11 Interview: May 19, 2010
http://lkdn.org/video.html

What is an Altruistic Donor and what is the Process to Become One?

2010-05-23T10:41:00.000-07:00

An altruistic donor is someone who would like to donate a kidney but does not have a recipient. This is someone who would like to give the gift of a better life to another human being. This is also known as a Good Samaritan Donor.

The impact of being an altruistic donor can be mind boggling as in my case, becoming the domino that set off a kidney pairing where 8 people were able to receive a kidney. I was going to be thrilled if accepted, to help one person. My blood type is O positive which makes me a universal donor. I am able to give to A or B where A cant give to B and vice versa. This is an ideal situation to set up a kidney pairing. When I was asked in the testing phases if I wanted to donate one to one or be involved in a pairing, my answer was I would prefer to be involved in the pairing where more then one person would benefit. But I was willing to do one to one as well depending on the need. Do not be discouraged if your blood type is not O positive. It is still possible to be part of pairing.
If for some reason you can not be part of pairing…keep in mind what the person who receives your kidney is thinking. You can change life for another human being! There is no greater gift than that.

Becoming an altruistic donor is a decision that only you can make. No one should make you feel pressured or obligated to donate… What I can tell you from my personal experience is if I had ten kidneys, I would give nine.

I was extremely fortunate to have organizations like The Living Kidney Donor Network, founded by Harvey Mysel here in Chicago and The John Brockington Foundation, founded by John and Diane Brockington in San Deigo, California as mentors and a wealth of information. If you are thinking of giving the gift of life, do your research and visit both of these websites to gain a better understanding of the donor process and to gain a stronger understanding of the kidney pairing exchange process.

You should investigate and decide what hospital in your area has a Kidney Transplant Program and ask them to send you the initial application to become a kidney donor. The following are the phases of testing that you will you go through before approval. How quickly these steps transpire all depend on the facility. I have heard the average is 6 months but from the time I started my medical testing to the time I donated was only a period of 9 weeks. Don’t be afraid to be pro-active and call the facility to find out where you are in the process.

Keep in mind every facility has a bit of difference in order but this is what you can expect.

Phase 1
Find out what hospitals in or near your area have Kidney Transplant Program. Be sure to ask them up front if they are willing to consider an altruistic donor. There are actually some hospitals that will NOT, which is yet another topic I’d like to attack. They will send an information kit along with an application for you to complete. You will be asked to sign a medical release form to obtain records from your primary physician(s).

Once the facility has received the application and reviewed it, you will be asked to come in for an initial blood draw to determine your blood type and for rule out any conditions that could prohibit you from donating. You will also be asked to do a 24 hour collection of urine to bring with you for your initial lab tests. I made sure my appointment was on a Monday so I could have Sunday to do the urine collection at home.
You will most likely be contacted by the Independent Donor Advocate (IDA) to explain all four phases of the donor process. Your assigned IDA is your main point of contact for any questions, needs or concerns that you may have.

Phase 2
Will include more general lab testing as well as radiology tests to determine overall health, renal focused evaluation to determine the presence of any underlying kidney disease and screening for transmissible diseases.

Phase 3
You will have a general History and physical by one of the medical facility Doctors. You will also see a social worker and possibly a psychiatrist to review your psychological history. If these exams are okay you will then have a CAT scan (with and without dye) of your kidneys to be sure that both are functioning well and also an EKG.
Between phase 3 and 4 you should receive a call that will determine if you are approved to donate. If you are a suitable donor and still want to donate there is usually a 7 day “cooling off period” that is required by all living kidney donors. This must be your decision for all the right reasons and any medical facility wants to be sure that this is what you truly want to do. Remember, the facility is as concerned about your well being as well as a recipient.

Phase 4
Is geared more around Pre-surgery preparation. One to two weeks before the surgery is scheduled you will most likely have to have updated blood tests. You will meet the surgeon(s) and transplant nurse(s) who will answer any questions that you may have as well as going over your
Pre-op instructions.

Make Life Happen!!

WTTW, Channel 11, May 19, 2010 Interview:
http://lkdn.org/video.html

Meet My Recipient, Dr. Daniel Becker

2010-05-15T10:12:00.000-07:00

I have had so many people ask me if I knew who would be getting my kidney and the answer was no. Since I am an altruistic donor my kidney goes to who needs it and that is the most important thing. During my evaluation process to become qualified as kidney donor, one of the many questions I was asked was you would like to meet your recipient?
My answer was yes of course! But only if it was comfortable for the recipient to do so. I have to remind myself that even though this is a tremendous gift to someone you must also respect their privacy for whatever reasons they might have.

Fortunately I have had the honor of meeting my recipient. As I said in my earlier blogs all of us were invited to the press conference following our surgeries. It was an amazing moment, truly a life changing moment. None of us had any idea that this would be the largest kidney pairing Northwestern had ever done. I know that the hospital had to bring an extra staff of 40 people in order to handle this huge kidney exchange and would require a tremendous amount of coordination and endless hours of matching and scheduling for the Transplant Staff to make it all happen. To them, I give my thanks for their dedication.

Dr. Dan Becker, a veterinarian in Naperville, Illinois is the gentleman that ended up receiving my kidney in the pairing process. Dan graduated from University of Illinois in 1984 and has been a veterinarian for 26 years this month! He practices at Boulder Terrace Animal Hospital in Naperville and has a lot of cute, fury fans. I wanted to speak to him first before writing this as I respect his privacy. I was so happy that he is allowing me to share his story. Dan felt it was an important part getting the word out about the importance being a Living Kidney Donor.

Dan and I didn’t have much time to really speak the day of the press conference. All of us were exhausted, on pain medication and were anxious to go home. I asked him to describe to me the events leading up to his needing a kidney transplant. He was diagnosed with diabetes at the very early age of 3 years old. Dan and his parents, Dick and Lynn Becker and his siblings knew that eventually he would most likely need a kidney transplant. August of 2009 Dan’s kidneys were shutting down and his fears were confirmed. He did go on dialysis and he had to coordinate his dialysis treatments so that he could go home afterwards. It was extremely exhausting for him and he had issues with dehydration. The idea of being on dialysis for an extended amount of time was definitely not a happy one. Now knowing what needed to happen, Dan and his family immediately started looking into finding a donor for him. His staff, family and friends were all supportive and many stepped forward to donate. Some were eliminated because they did not qualify, others because they were not a match. It was actually Dan’s receptionist that recommended Northwestern Hospital as an option as her Mother had received a transplant there.

Dan’s sister, Pam was determined and although she was not a direct match for Dan she wanted to be part of this kidney exchange pairing so it would be possible for her Brother to receive a kidney. She flew in from Atlanta at her own expense to participate as did Dan’s parents Dick and Lynn Becker to be there for support to Dan and Pam. In Dan’s mind, struggling with diabetes most of his life, he was amazed that the need for a transplant had not happened sooner. He managed to keep his diabetes under control with close medical monitoring, diet, exercise and insulin but after so many years it became too much.

Needless to say he was extremely grateful to his Sister for stepping up on his behalf in this pairing and I am sure the recipient of her kidney is as well! He received the magic phone call on Good Friday that Northwestern had found a match for him and his surgery was scheduled for April 26, 2010.

His progress has been excellent and no dialysis! His numbers were normal before he even left the hospital. Dan brings a very important topic to the table. It is imperative it to get the word out about the importance of living donor ship and kidney pairings. In our conversations he brought up an interesting point. Some people are more than willing to donate providing the person they want receives their kidney, but not open to it if the person they know is not going to be the recipient. What people need to understand is if they are donating a kidney in a pairing exchange like ours…EVERYBODY WINS! Being a living kidney donor to me, is a Kidney Squad Team who are there to benefit as many people as possible. Since I was an altruistic donor and Dan’s Sister was not compatible to donate directly to him, he received my kidney.

I saw Dan a week after our surgeries at our follow up appointments at Northwestern. I was amazed at how GREAT he looked. Surgery for the recipient is more intricate than the donors. He was sporting 34 staple stitches. Wow…ok…I am definitely not going to complain about my small incisions. I remember saying to Dan at the press conference to remember two things…if he craved dark chocolate that was me and if he found himself saying I have to pee out loud..that was definitely my trademark.

If you are interested in becoming a living kidney donor...Make life happen!

WTTW, Channel 11 Interview, May 19, 2010
http://lkdn.org/video.html

Becoming an Altruistic Donor

2010-05-07T23:34:00.000-07:00

Since I started on this journey of donating a kidney the one thing that everyone seems to ask is...why? It's not a family member or someone that you know so why do you feel compelled to do this? It's truly not meant to be negative it's more out of concern for my well being and the combination of the whole idea being foreign to them.

I chose to do it because I wanted to make a difference. This is my way of giving and knowing that someone will have a chance at life. A chance for someone to live a more comfortable life without dialysis and to have renewed life with their loved ones. I realize this is not a comfortable decision for a lot of people. It is my mission to see the numbers of altruistic donors increase. For people to understand that living with one kidney does not change the quality of their own life.

It would be irresponsible to say that there can't be any possible pitfalls, but I feel they are minimal and that being well read on the topic is vital to making your decision. Becoming a donor is an extensive process of testing, more testing, scans, interviews and all being done for your well being as much as the potential recipient. For me personally, the positives far outweighed the negatives.

I dug into all the information I could find and I had a true advantage of being familiar with The John Brockington Foundation based in San Diego, California and The Living Kidney Donor Network based here in Chicago, started by Harvey Mysel. I looked to them both as mentors helping guide me through the process, answering questions and offering suggestions.

No one can persuade you nor should they. This must be a decision that you and you alone are determined to make. I told my friends and family members early on in the process about my decision and I would say that 95% were totally behind me. You have to be prepared for the Why question and know in your heart and head that you feel comfortable with your decision.

What I can tell you from my personal experience is that I could not be happier about my kidney donation. When I originally had my initial interviews with the psychology department and the social worker ... I was amazed at the number of questions. But as I look back, I completely understand why. We discussed for hours the pros and cons, what to expect and I had a case worker assigned from the hospital who I could speak to anytime with an concerns or questions I might have.

One of the questions asked of me is did I want to be an individual donor (one to one) or did I want to be part of a kidney pairing. My first preference was to be part of pairing because more than one person will receive a kidney by doing so. Little did I know that I would be part of such a large pairing! It was overwhelming at times but I was even more excited to think so many would benefit. Sometimes being part of a pairing is not possible depending on blood type and it must be a specific donation. I definitely preferred the pairing for obvious reasons stated before, but I also was not against a one to one donation. All I really cared about...is seeing someone benefit.

There was a time where an altruistic donor was looked at in a different light than today. It carried some very negative connotations as if one couldn't be in their right mind to want to do such a thing. Obviously that is NOT the case today. There are a lot of people out there under the misconception that you can't donate a kidney unless it's a family member or someone that you know and have a close relationship to.

WTTW Channel 11 Interview link:
http://lkdn.org/video.html

Living Kidney Donor

2010-05-05T03:47:00.000-07:00

On April 26, 2010 I gained the title of Living Kidney Donor, without a doubt one of the most joyous titles I could have. I had wanted to donate a kidney since 2006 when I attended a Fund Raiser Dinner for the John Brockington Foundation in San Diego, California. I will never forgot that evening. During the fund raiser, a couple sitting just a few tables from us received a page...a donor had been found for their child. It sent chills up my spine. From that point on I made it my mission to donate a kidney.

I was laid off from my Director of Marketing position here in Chicago in 2009. I figured since I wasn't working, I should make the most of my time while searching and to do things I never have time to accomplish. I started by contacting The John Brockington Foundation to find out how and where do I begin? Diane Brockington was excited to hear about my mission and put me in contact with Harvey Mysel, founder of the Living Kidney Donor Network, located here in Chicago. That was the beginning!
If you would like to learn more about these two great organizations, please follow thelinks below:
http://www.lkdn.org
http://www.johnbrockingtonfoundation.org/default.php

On January 13, 2010 I had the pleasure of meeting Harvey face to face to discuss my desires of being an altruistic donor. After discussing the numerous ways to approach this, I decided I wanted to apply for donorship at Northwestern Hospital, where Harvey himself had a kidney transplant. I had already contacted Northwestern and had my paperwork completed for the application. I mailed it that very day. Four weeks later I got a phone call from the hospital to come in and start testing to see if I qualified health wise and emotionally to become a donor.
My initial tests were all fine and by mid February I was approved to move to the next phase which is an EKG and a CAT Scan of my kidneys, as well as interviews with their Social worker and members of the transplant team.

As an altruistic donor, it is imortant for any medical facility to feel confident that you want to become a donor for all the right reasons as well to have an understanding of what would motivate you to do so. They are concerned for your future well being and want to be sure that you have a clear understanding of any negatives as well as the positives. Although there are thousands of kidney donations a year, these donors are usually friends, family or have a connection with someone who is in need of a kidney. There are NOT that many altruistic donors. I have no accurate stats but I believe they are only in the low hundreds each year and my mind just couldn't accept just how low it was.

We can live a normal healthy life with one kidney, so why are more people not stepping forward to donate? It is clear that my mission is to do whatever I can to raise the awareness of of not only being a living kidney donor, but also an organ donor.

March 15, 2010 I received the official call from Northwestern that I had been approved to be a Kidney Donor. Wow...that was fast and it hit me that this would become real. I was incredibly excited. I asked when this would all happen and because I am O positive blood type and an altruistic donor, it would be the perfect opportunity for Northwestern to do a kideny pairing where more then one person would receive a kidney. Since O positive is a Universal Blood type we are able to donate to either O positive, A or B, where A can't give to B or B can't give to A. Little did I know that this would set off the largest kidney pairing in Northwestern Hospital's History. April 28, 2010

The first of April, 2010 I was asked to come in and do another blood draw to make sure that it matched my hopeful recipient. Good news, it did!

April 8, 2010 The surgery date had been set and not only set...but 8 people would receive a kidney from the exchange. This just totally blew me away. Little did I know, one person, just me, no one special, could change and make such an impact. Surgery was scheduled for April 26, 2010. I was nervous, excited, nervous, excited but definitely more excited.

I went in that morning around 5:30am, surgery at 7:30am and out of recovery at 2:00pm. My mind was racing with thoughts of I hope this all works, I hope the recipients do well and that the kidney is not rejected. I wanted a Starbucks coffee, but no can do...no food after 6pm the night before. You know how that works...when you CAN not eat..you want to and vice versa. Of course there was the typical one, please God, let me come out of this alive.

There are no words that can adequately describe this moment for me. With the exception of giving birth to my two Sons, this was definitely the 3rd best moment of my life. I wake up in my room, friends waiting and of course I am definitely sore. But not the kind of sore that is so bad that you can't function. I am advised by my nurse the sooner I get up and walk the quicker for the healing process to begin. With encouragement and watchful eyes as well as brutal teasing, my friends assist me in my first walk around the hospital floor. Ok..Im up....that was the hardest part....I start my shuffle down the hallway.

After two days, when most of us were going to be discharged, there is a Press Conference, including all of the donors and recipients. Wow this will be fun looking like I haven't showered in days (because I hadn't) and my hair looks like it's on a mission of it's own. I called Harvey Mysel to let him know about the Press Conference in hopes he can be there. I didn't know what to expect and having his support meant a great deal to me.
It was like a class reunion of the Kidney Squad. Just incredible. All 8 donors were doing great and all 8 recipients were doing great. Here I stand face to face with the man who received my kidney. His parents had flown in from Florida to be with him. Everyones eyes filled with tears and I am so thankful to God to have this opportunity. I had so many medical teams, family members, donors and recipients come up and hug me as Dr. Leventhal introduced me as the altruistic domino that started it all. I felt complete, utter calmness and joy that I could be part of such a wonderful moment and to give someone else the opportunity to have a life.

The waiting list for a new kidney on the average is 5 to 8 years. Being on dialysis more than 5 years is extremely difficult on the body and it's ability to function.
There are over 80,000 people on the waiting list for a kideny transplant.

I just completed my one week check at Northwestern on May 3rd. When I walked in to the Transplant unit, it was like old home week. All of us involved in the pairing were there and it was so great to see everyone looking good, feeling good and most importantly all healthy. All of the recipients numbers were excellent and when I asked my recipient about his progress, he said "Cara, no dialysis it's heaven and Dr. Baker said I had a beautiful kidney" I laughed and said yeah yeah I hear that all the time.

I will never have the financial means to help any organization where it would really make an impact. This was my way of giving and I know in my heart for me not only was it the best decision but a true blessing for me.
I am happy to answer any questions you may have about becoming a kideny donor. I promise you won't regret the decision. But it must be YOUR decision. Although I originally wanted to be anonymous after the press conference at Northwestern, I knew that in order for me to be an advocate of Living Kidney Donor ship, that would not be possible. I don't believe there is anything better that you can give..Make Life Happen!

WTTW Channel 11 Interview Link:
http://lkdn.org/video.html

Eight receive kidney transplants in largest swap at Northwestern
(http://www.suntimes.com/lifestyles/health/2213492,kidney-transplants-northwestern-hospital-042810.article)
April 28, 2010
BY MONIFA THOMAS Staff Reporter/mjthomas@suntimes.com
Eight people received kidney transplants from eight unrelated donors in the largest-ever kidney swap at
Northwestern Memorial Hospital, hospital officials said today.
The eight-way "domino paired kidney exchange," involving 16 patients from four states, is also believed to be
one of the largest of its kind in the country.
The surgeries took place over a three-day period last week and Monday.
All 16 patients, ranging in age from 26 to 67, are doing well, said Dr. Joseph Leventhal, one of six transplant
surgeons involved in the surgeries.
Eight living donors each gave up a kidney and eight people whose kidneys were failing got one. Northwestern's
transplant team looked for pairs where a kidney donor and their intended recipient were incompatible with each
other but matched another donor and recipient in the same situation.
The first "domino" was an altruistic donor who was willing to give blindly to a stranger. The woman did not want
to be named.
Northwestern wanted to make the most of her "remarkable" generosity by setting up a paired exchange,
Leventhal said.
Two Roman Catholic nuns who were a compatible donor-recipient match were also responsible for making such
a large exchange possible, because the nun who intended to donate was a universal blood donor, making her a
match for another person in the exchange.
Had these pieces not fallen into place, Maria Isho, of Chicago, might never have gotten a kidney after waiting
nine years. Isho had antibodies in her blood that made it especially difficult to find a compatible donor.
Isho received a kidney from Nicole Smith, of Yorkville, whose stepfather Walter Perez got a kidney from a
Georgia woman.
Also part of the exchange were a husband and wife from Champaign, a sister and brother from Chicago and
patients from Missouri and Texas.
"To think that a complete stranger stepped forward to initiate this chain is just remarkable," Isho said. "I never
lost faith, and I'm so grateful to have a second chance."
Smith said she "couldn't be happier" with the outcome, because she was able to help someone at the same time
her stepfather was helped.
Praising the Good Samaritan, Smith said, "I hope she's blessed for the rest of her life."
© Copyright 2010 Sun-Times Media | Terms of Use and Privacy Policy
Affiliates: RogerEbert.com | SearchChicago - Autos | SearchChicago - Homes | Chicago Area Jobs |
Public Record Search | Centerstage
STM ::Eight receive kidney transplants in largest swap at Northwestern http://www.suntimes.com/lifestyles/health/2213492,kidney-transplants-no...
1

WTTW Channel 11 Interview link:
http://lkdn.org/